JRSSEM 2022, Vol. 01, No. 10, 1621 1634
E-ISSN: 2807 - 6311, P-ISSN: 2807 - 6494
DOI : 10.36418/jrssem.v1i10.165 https://jrssem.publikasiindonesia.id/index.php/jrssem/index
THE NEED FOR ANTISTIGMA SERVICES AND QUALITY OF
LIFE OF SCHIZOPHRENIA AT THE CARE FOR SOUL HEALTH
CITY IN SEMARANG CITY, INDONESIA
Sri Endang Windiarti
1*
Agus Soewandono
2
Zahroh Shaluhiyah
3
Annastasia Ediati
4
1,2,3,4
University of Diponegoro
e-mail: sriendangwindiarti@ymail.com
1
,suwandono49@gmail.com
2
,
shaluhiyah.zahroh@gmail.com
3
, ediati.psi@gmail.com
4
*Correspondence: sriendangwindiarti@ymail.com
Submitted: 29 April 2022, Revised: 09 May 2022, Accepted: 18 May 2022
Abstract. The Semarang City Government's efforts for the mental health village program have not
been programmed intensively. The purpose of this study was to explore an urban care model for
mental health in an effort to reduce stigma and improve the quality of life of people living with
HIV. This research is a qualitative research with an exploratory descriptive approach. Data collection
includes in-depth interviews with program stakeholders and direct observations of the program,
as well as qualitative feedback from program participants. Based on the results of research using
content analysis. The stages are: the text in the transcript, doing the unit of meaning, coding,
categories so that the theme is obtained. Ethics clearance was obtained from the Faculty of Public
Health, Diponegoro University, number: 579/EA/KEPK-FKM/2 Seven in-depth interviews were
conducted representing different mental health programs. The service model in mental health care
villages that is expected by the community is a form of intervention that aims to reduce stigma and
improve the quality of life of Schizophrenia and prevent recurrence.
Keywords: mental health care village; stigma; quality of life for Schizophrenia.
Sri Endang Windiarti, Agus Soewandono, Zahroh Shaluhiyah, Annastasia Ediati
| 1622
DOI : 10.36418/jrssem.v1i10.165 https://jrssem.publikasiindonesia.id/index.php/jrssem/index
INTRODUCTION
Indonesia shows the prevalence of
Schizophrenia, as much as 1.8 per mile. In
Central Java the Schizophrenia is 2.5 per
mile, while for the city of Semarang severe
mental disorders are 1.1 per mile (Hardati
& Ahmad, 2017). The capacity of psychiatric
care services in Central Java is still below
1,000 beds. This condition causes not all
patients to be served in psychiatric services
at mental hospitals in Central Java
(McCabe, 2019).
The city of Semarang with a population
of 1,668,578 with an estimate of People
With Schizophrenia is 1.1 per mile, People
with schizophrenia are a classification of
severe mental disorders with a progressive
disease course, tend to be chronic
(chronic), exacerbating (frequently
experience recurrence) (Zhang et al., 2013).
Recurrence in Schizophrenia is one of the
conditions that scourges society because it
has (Jones, 2016)
confused thoughts, strange behavior,
laughing alone, very stupid expressions,
smiling alone, delusions, hallucinations and
aloofness, so sufferers are alienated and
belittled (Rus-Calafell et al., 2014).
The results of the research conducted
are that there are still many Schizophrenia
who experience discrimination even
though they are already in community-
based mental health care (Suluh et al., no
date). The results showed that 69.1% gave
stereotypes, 52.9% gave separation and
52.9% respondents did not discriminate
against Schizophrenia. The results of this
study are the less stigma that is received,
the faster and more sustainable medical
treatment is carried out (Charlesworth et al.,
2012). Stigma against mental disorders in
the city of Semarang is still high by looking
at the high rate of recurrence of
Schizophrenia in the mental hospital of dr.
Amino Gondohutomo Semarang (von
Renteln-Kruse et al., 2015). Stigma of
mental disorders is one of the most
common reasons for not seeking mental
health care which leads to negative health
consequences and suffering for sufferers
and families (Dardas & Simmons, 2015).
The efforts of the Semarang city
government to care for mental health in the
urban village program have not been
programmed intensively, because it has not
become a priority program. The results of
in-depth interviews with the Semarang City
Health Office, socialization of mental health
care in the city of Semarang has not been
carried out so that there has never been an
intensive mental health cadre training. The
purpose of this study was to find the right
mental health village model to reduce
stigma and improve the quality of life of
Schizophrenia in the community.
The results of existing research to
improve Schizophrenia services, one of
which is the addition of skills through
professional training in practice in primary
services and supported by supervision
activities by professionals in the mental
health sector on an ongoing basis.
This discussion identifies the best
course of action and strategies, to identify
key programs, and to gain further
theoretical insight into appropriate anti
stigma programs. So that it can create the
expected community mental health
services. The particular methodology
chosen for this research is Fundamental
theory, which is a suitable methodology for
1623 | The Need for Antistigma Services and Quality of Life of Schizophrenia at the Care for
Soul Health City in Semarang City, Indonesia
the question of the process in which the
theory will be developed inductively.
METHODS
The themes of the questions are A.
What are the views of health workers on
stigma and KH Schizophrenia. B. What is the
role of health workers in stigma and quality
of life for Schizophrenia. C. How are the
efforts of health workers against stigma
and KH Schizophrenia. D. How is the need
for a service model in the community in an
effort? prevent stigma and improve the
quality of life for people with HIV. Sources
of data were taken from in depth interviews
(IDI) to health workers, namely the Head of
P2P of the health office, the head of the
puskesmas and the person in charge of the
community mental health program.
Interview preparation, making sure that the
recording device can be used properly. This
research is qualitative research with an
exploratory descriptive approach. This
method is used to explore, understand and
interpret the factors that lead to success in
exploring the need for mental health
services in the community through
community empowerment to reduce
stigma and improve the quality of life of
people with HIV. Data collection began in
December 2019 until May 2020. In depth
interviews with informants were carried out
at the client's family home, the Puskesmas
office, the city health office and the village
office hall. The interview process lasts
between 20-60 minutes.
Data analysis is: all the results of
conversations in interviews are written in
the form of transcripts, sort out meaningful
words or sentences (meaning units), carry
out the coding process that is adjusted to
the independent variables, make categories
of each coding so that it can determine the
theme (L Mitchell & M Jolley, 2010). The
ethical clearance was obtained from the
Faculty of Public Health, Diponegoro
University, number: 579/EA/KEPK-
FKM/2019.
RESULTS AND DISCUSSION
A. Analysis of the Needs of the
Community Mental Health Service
Program according to Health
Workers
Indepth Interview (IDI) conducted
to the Head of the Prevention and
Control of Non-Communicable
Diseases and Surveillance (P2TMS)
Semarang City Health Office, Head of
Public Health Center, Person in Charge
and Implementer of Community Mental
Health Public Health Center and their
families Schizophrenia. In-depth
interviews were conducted at the City
Health Office, Puskesmas and the
homes of Schizophrenia families. The
number of IDI respondents was 7
people. In-depth interviews were
conducted each for 30 minutes to 60
minutes. The topic of the in-depth
interview is the views, roles, efforts and
expectations of mental health
programs in reducing stigma and
improving the quality of life of
Schizophrenia in Semarang City. The
results of in-depth interviews based on
topics are as follows:
1. Health Workers' Views on Stigma
and Quality of Life for
Sri Endang Windiarti, Agus Soewandono, Zahroh Shaluhiyah, Annastasia Ediati
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Schizophrenia
According to the mental health
department in the community, the
public is still not responding well to
mental disorders so that some
people with mental disorders are
still ostracized, and their space is
limited. Stigma still occurs in
families, groups and even health
workers. This is because the mental
health service program at the
Health Service Center (Primary
Heath care) has not been running
well. This means that people find it
difficult to take people with mental
disorders to mental hospitals. So it's
better to just hide it at home by the
family. Basically the stigma of
mental disorders in society still
exists, especially by families and
communities. This is theSemarang
City Health Office as follows:
Statement from the Head of the
"ODGJ is still very isolated if in the
community we meet many cases of
severe ODGJ, we apologize for
severe ODGJ who are not in shackles
but locked in a room, not tied up, but
that is a process that limits their
space for movement. , in terms of
human rights etc.” (Health
Department, M, male).
Health center health workers
are not stigmatized, but with limited
facilities and inadequate personnel
capabilities so that patients who
come with complaints of mental
disorders are immediately referred
to a hospital or mental hospital. So
that doctors or nurses at the
Primary Heath care do not meet
with patients because those who
come to the Primary Heath care are
only families to take care of BPJS.
The supply of
psychopharmaceutical drugs at the
Primary Heath care is very limited,
this makes the services for mental
disorders at the Primary Heath care
less complete. The following is the
statement:
“From a health perspective, I
have never stigmatized
schizophrenia, because the services
currently have not been handled
specifically. We are also constrained
by drugs but currently the drugs are
still very limited. The drugs needed
by him (Schizophrenia) have not
been obtained at the Puskesmas, so
they ended up going to the
Puskesmas just to get a referral. His
attitude, service is because we rarely
touch each other, ma'am…because
those who ask for referrals are only
their families. Usually it comes only
once, then, instead of bothering the
family with him, he usually has to
take it to the Puskesmas for the next
time the family asks for a referral.”
(Head of Puskesmas, I, female)
Socialization of new mental
health programs in several ward or
Primary Health care, with Thus
health education about mental
health in the community is still very
lacking, some even have never.
2. The Role of Health Workers,
Cadres, Families, and the
Community
According to a statement from
the health office, the role of the
1625 | The Need for Antistigma Services and Quality of Life of Schizophrenia at the Care for
Soul Health City in Semarang City, Indonesia
family to bring family members with
mental disorders was initially done,
but for the next 1-2 years they still
carry out control, but over time the
symptoms may have decreased, the
family already used to the condition
so control and taking the drug
stopped. So that when mental
illness symptoms appear more
severe, then the family will return to
the health service for a check-up.
Following his statement:
"... the family does not want the
patient to be taken to the hospital
because they are afraid that later on,
it means that there is still insufficient
education in the community so that
education regarding the treatment
of schizophrenia, whether medically,
can be done with regular, continuous
treatment that does not stop the
drug, because taking the medicine is
actually for him not to relapse, it is
said to be cured of his symptoms,
social activities will be good…”
(Health Department, M, L)
The head of the Primary Health
care explained that health workers,
cadres, families and the community
towards Schizophrenia in the
community were still not optimal,
because only services and helping
Schizophrenia had not been
intensively and with good planning.
Health workers who only help
provide referrals and feel they are
not competent to handle mental
illness, cadres feel lack of
knowledge to deal with mental
illness, families lack knowledge and
skills in caring for Schizophrenia
and the community feels lay with
mental disorders, so that their
respective roles are not maximized.
The following is her statement:
"This is temporarily not optimal,
at least we have a health center if it's
not for prevention, ma'am...at least
to give a referral, that's okay.... As for
prevention, there is no innovation for
mental health.... The cadres are just
socializing, it's like there is no
training. If a case is found, it's
reported, and the family can't handle
us PPD, the social service directly, so
he can help bring the patient to the
RSJ ". (Head of Puskesmas, I,P)
The role of cross-sectoral
collaboration in mental illness
services is very much needed in the
community. This is because the
healing takes a long time and needs
the support of the people around
him to become more confident,
more empowered and creative.
3. Efforts made by health workers,
cadres, families, and the
community.
According to the health office,
the efforts made by the health
office on mental health programs
have just begun. This is because the
mental health program is not a
priority program. After collecting
data on non-communicable
diseases in the city of Semarang, it
turned out that the mental illnes
had increased significantly and had
just started the program. However,
it is not in line with the existing
Sri Endang Windiarti, Agus Soewandono, Zahroh Shaluhiyah, Annastasia Ediati
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budget, so the program until now
has not been running well,
especially with the current
pandemic conditions. Several
efforts that have been initiated
include communicating and
coordinating with cross-sectors,
handling Schizophrenia is not only
the responsibility of health workers
but requires complex cross-sectoral
collaboration. The following is his
statement:
“……Alhamdulillah has
communicated by making efforts to
meet with cross-sectors where we
involve the Social Service, TPD
outreach team, urban villages,
Community Health Centers, we start
from places where there are cases of
ODGJ how can we jointly carry out
protection efforts , prevention of
conditions psychologically, socially,
physically, for these severe ODGJ
patients…” (Health Department, M,
L).
According to the head of the
Puskesmas, the efforts made by
health workers, cadres, families and
the community have not been
maximized. Puskesmas health
workers are still running priority
programs such as HIV, MCH, DHF,
etc. while mental disorders have not
been included in the priority
programs, so the efforts made have
not been maximized. Health
services at the new Puskesmas
provide physical health services,
while mental health services are
referred to a general hospital or
mental hospital. The following is her
statement:
" In my opinion, ODGJ is a new
program, ma'am, if they are larvae
and then their DB, they already
understand that they already know
TB, they already know HIV but if they
are ODGJ they don't really
understand but they are also very
responsive, right, Ms. Santi, if it is to
patients too escorted by the
Puskesmas itself actually wanted to
be able to socialize more about this
disease to the community so that at
least the stigma in the community
was reduced…” (Head of Puskesmas,
R,P)
The mental health program has
only been socialized once this year
and has been accompanied by
other health education programs.
As a result, people feel cloudy with
mental health.
4. Expectations for mental health
programs in the community to
reduce stigma and improve the
quality of life of Schizophrenia
The health department expects
that the Mental Health Alert Village
Program has been planned, but due
to a lack of budget support, it does
not run well. Of the 37 Community
Health Centers, only 1 puskesmas
has a mental health cadre with
assistance from the mental hospital
dr. Amino Gondohutomo
Semarang. It is hoped that every
kelurahan will have an empowered
kelurahan that cares about mental
health so that the community can
maintain, prevent, and deal with
mental disorders independently,
1627 | The Need for Antistigma Services and Quality of Life of Schizophrenia at the Care for
Soul Health City in Semarang City, Indonesia
especially in the city of Semarang,
where there is a regional mental
hospital facility. This will facilitate
the transportation of visits. There
are also many educational
institutions in the city of Semarang
so that cooperation to maintain the
continuation of the program is
actually easier, therefore the village
program cares for mental health, it
is hoped that it can run well. The
following is a statement about what
is expected:
"We will try later at the village
level to have a mental healthy alert
village, our hope is like that. It's just
that it's a bit difficult for us to enter
urban areas, isn't it..." (Health Office,
M, L).
According to the head of the
Harapan Health Center for mental
disorders services in the community
for health workers, cadres, families
and the community all care about
mental disorders so that the stigma
of mental disorders and the quality
of life of Schizophrenia is good. So
that conditions like this are very
concerning, health workers, cadres,
families and the community feel the
need for knowledge about mental
disorders. Increase knowledge
through socialization, health
education, training and approaches,
direct assistance to families. Thus
increasing the competence of
health workers, cadres, families and
communities in dealing with mental
disorders and preventing mental
disorders, the following is the
statement:
“………if we want to provide
information we must have
competence if we do not have
competence how can we provide
socialization or information to the
community or cadres later, when we
meet the community, we have to do
this, automatically we must be given
information about this first so that
we have the competence to manage
mental health like what…(Head of
Public Health Center, I, P)
Mental health programs should
be primary health care services and
not just programs of choice and
development. This is because
mental health is an integral part of
health and well-being. By becoming
primary, mental health services
become optimal. Moreover, now
more and more medical personnel -
doctors and nurses - public health
centers who can handle mental
disorders.
The results of the IDI to health
workers can be concluded that
there are several things that need to
be done in relation to mental health
services in the community as
follows:
Table 1. Mental Health Services In The Community
Sri Endang Windiarti, Agus Soewandono, Zahroh Shaluhiyah, Annastasia Ediati
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DOI : 10.36418/jrssem.v1i10.165 https://jrssem.publikasiindonesia.id/index.php/jrssem/index
Topic
Of Health Workers
Expectations and
Intervention Plans The
views of health workers,
families, community leaders
and cadres on stigma and
quality of life for
Schizophrenia
Mental disorders in the
community are still not well
received by the community.
The mental health service
program at the Health Service
Center has not been running
well).
The services provided are for
reference only.
Health education to families
and communities is still very
lacking.
Socialization of anti-
stigma service
program with
outpatients who care
for mental health
Village administrators
Care for mental health
Training of cadres and
mental health
administrators
Family and
Schizophrenia
assistance
The role of health workers,
families, community leaders
and cadres on stigma and
quality of life for
Schizophrenia
Mental health programs are
not a priority program for
Health workers and the
community also have not
played a good role in handling
mental illnes families who still
refuse the arrival of health
workers.
Health workers feel they are
not competent to handle
mental illnes,
Puskesmas cannot monitor
continuously
The efforts of health
workers, families, community
leaders and cadres to reduce
stigma and improve the
quality of life of
Schizophrenia
, the efforts made by the
health office on mental health
programs have just begun.
efforts that have been initiated
include communicating and
coordinating with cross-
sectors.
The Puskesmas has started to
run a community mental
health program but
temporarily has not been
maximized.
Expectations of health
workers, families, community
Mental Health Alert Village
Program by empowering
1629 | The Need for Antistigma Services and Quality of Life of Schizophrenia at the Care for
Soul Health City in Semarang City, Indonesia
leaders and cadres in order
to reduce stigma and
improve the quality of life of
Schizophrenia
urban villages that care for
mental health
Increase competent human
resources, who understand
and are skilled in dealing with
mental disorders.
Each intervention plan will be
described in the following: The results
of the above study need community
empowerment to increase knowledge
about mental disorders at certain levels
so as not to cause stigma to people
with mental disorders that can be
cured.
The discussion in this chapter is the
result of an assessment of community
needs that are felt to be very necessary
to create a form of mental health care
kelurahan services in order to reduce
stigma and improve the quality of life of
people with HIV. Some things that are
needed areis
B. Socialization of the Mental Health
Care Village Model Needed.
Socialization of the
The mental health care village
model is to socialize villages that have
readiness in the health sector, where
villages whose residents have the
resources and ability to deal with health
problems independently (Erwanto &
Kristianto, 2011).
Sendangmulyo Village is the area
with the highest Schizophrenia in the
city of Semarang, so it is natural that it
is very necessary for the community to
pay attention and care about mental
health. The following is a description of
the stigma of society towards patients
with mental disorders, which are related
to susceptibility, benefits, self-efficacy
and barriers (Knaak & Patten, 2016).
People consider mental disorders to
be incurable, patients become unable
to take care of themselves, are
dangerous, some even say that the
cause of mental disorders is the
existence of other factors outside of
medicine, being used for magic, and so
on (Spitzer & Endicott, 2018).
The community with their
awareness of carrying out their duties
and functions as administrators of
mental health working groups and
mental health cadres is very
enthusiastic and moves quickly.
Schizophrenia who drop out of
treatment and have never received
treatment are immediately helped to
get treatment. Cadre assistance for
every Schizophrenia who returns home
from the hospital is always monitored.
Mental health conditions were
found to be more stigmatized (12.9%)
and belittled (14.3%) compared to
physical conditions (8.1 and 6.8%),
respectively. Among mental health
conditions, the most stigmatized
condition was schizophrenia (41%)
while the most underestimated was
obsessive compulsive disorder (33%)
(Robinson et al., 2019).
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Anti-stigma interventions need to
not only inform individuals about the
high prevalence of mental disorders but
also need other interventions to be
effective (Lawson, 2016).
C. It is necessary to establish the
management of the mental health
working group and Mental Health
cadres.
This management consists of
community leaders who are willing to
take the time and thought to help
residents in their area who need
assistance in the form of energy and
thoughts to improve their health,
especially mental health. The
management needs are adjusted to the
needs of the region or area, in this case
the Sendangmulyo village. This model
serves as a tool to help guide the
development and implementation of
anti-stigma programs in the context of
health care. The organizing model for
this service is an anti-stigma health care
provider program as the basis for anti-
stigma activities in health care and to
identify community needs. There are 4
stages that need to be considered,
namely: a. Social process: Health care
program against stigma, b. Set up for
Success, c. Building programs as
needed, d. Creating Networks, e.
Changing Culture (Parker et al., 2016).
This study emphasizes evidence-
based guidelines for reducing stigma.
Action-based assessment, needs
assessment based on conditions, and
using examples of successful Desa
standby models. Other studies have
reported similar findings. Kelurahan
caring for mental health is a form of
suitable condition for the
implementation of the solutions
proposed by the community. So the
research is able to explore perspectives
on stigma reduction strategies used by
different stakeholders, patients and
their families. Some intervention
strategies are more focused on the
community. Emphasis on education for
attitude and cultural change emerged
as a fundamental factor for reducing
stigma (Taghva et al., 2017).
Despite increased mental health
promotion and advocacy, stigma
persists and poses a significant threat
to healthy functioning at macro- and
micro-sociological levels (Holder et al.,
2019). Stigma gradually expanded with
the incorporation of a wider social
context in micro and macro level where
individuals, institutions, and
construction of a larger culture shaping
and influencing the perception of what
is different about the stigma, and
therefore need a different approach.
D. Mental health cadre training is
needed.
The increasing number of people
with disorders is a burden for
individuals, families and communities.
This situation causes people with
mental disorders to really need
appropriate treatment so that people
with mental disorders can be accepted
back into the community. One of the
efforts that can be done is to empower
the community, namely the existence of
mental health cadres.
The training materials include the
Village/Kelurahan program for health
care, early detection of families, family
1631 | The Need for Antistigma Services and Quality of Life of Schizophrenia at the Care for
Soul Health City in Semarang City, Indonesia
characteristics, health, risk and
disturbance, home visits, case referrals.
The training is carried out for 3-4 days,
with the time agreed upon by the
cadres and administrators. The media
used are modules, booklets, and
leaflets.
New knowledge on the applicability
and effectiveness of evidence-based
psychological and collective
empowerment interventions (ACT, CEE,
and ACT+CEE) in overcoming mental
illness stigma and mobilizing
community leadership (Gurugea et al.,
2018). In the study, three simultaneous
interventions for people with mental
disorders in reducing stigma provided
new knowledge on how to get effective
strategies to seek new services in the
community.
E. Family and Schizophrenia Assistance
Required
Implement and practice mentoring
for families in order to find out how to
care for Schizophrenia. The most
important element for people with
mental disorders mental illnes is family.
The importance of family participation
in clients with mental disorders can be
viewed from various aspects. First, the
family is a place where individuals start
interpersonal relationships with their
environment. The family is the main
educational institution" for individuals
to learn and develop values, beliefs,
attitudes and behaviors. Individuals test
their behavior in the family, and family
feedback influences individuals to
adopt certain behaviors. All of these are
preparations for individuals to play a
role in society (Tristiana et al., 2018).
Family psychoeducation programs
have shown a reduction in post-
intervention stigma (Morgan et al.,
2018), it is more effective in reducing
stigma given directly to caregivers who
want to take good care of
Schizophrenia.
Orientation to overcome stigma
varies widely according to context,
individuals often choose to hide
problems, to anticipate discrimination
and lack of confidence to face stigma
(Isaksson et al., 2018).
Mentoring interventions and
educational interventions have a direct
effect of up to 50% on stigma. More
research is needed to find out how to
sustain benefits in the long term, and to
find out how effective these
interventions are more positively, to
reduce social distance and increase
knowledge related to stigma
(knowledge that refutes stereotypes)
(Henderson, C. and Gronholm, I. and PC
(2018) 2018).
Anti-stigma interventions in
Indonesia should consider related
sociodemographic factors and use a
psychosocial approach to improve
literacy and contact with mental health
patients (Hartini et al., 2019). Mental
Health Interventions require broader
innovations that are translated into
public interventions. Exploration of
community needs in accordance with
the times, to improve mental health
services (Bishop et al., 2018).
CONCLUSIONS
Sri Endang Windiarti, Agus Soewandono, Zahroh Shaluhiyah, Annastasia Ediati
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The service model through the mental
health care village is highly expected by the
community, the service model in the
mental health care village in question is a
form of intervention that aims to reduce
stigma and improve the quality of life of
Schizophrenia and prevent recurrence by
conducting socialization of mental health
programs to families, community leaders ,
cadres and health workers, forming health
working group administrators, forming
mental health cadres, training mental
health cadres and mentoring and
education on family health and
Schizophrenia. The culture of all members
of the organization becomes very
important in making services more useful
and effective.
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